In the latest chapter of our Giving Back initiative, the Resilience-Building Leader Program is very pleased to offer RBLP Leadership Certifications to the staff at the Defeating Epilepsy Foundation, whose mission is “to provide the advocacy and educational resources needed to the epilepsy community and our society.”
Natalie Boehm is the founder of Defeating Epilepsy, and she and her team created the organization in 2019 in part to combat societal stigmas that are associated with epilepsy, as well as provide resources and opportunities for those individuals who are living with the condition. Boehm and her team are working toward these goals on a global level, doing outreach both domestically and internationally to ensure that those with epilepsy are ensured their rights to healthcare, education, and employment by deploying educational resources, networking and community service.
Among the ongoing projects supported by the foundation are a series of outreach programs in the African nations of Uganda, Malawi and the Democratic Republic of Congo. In the latter, government restrictions that are in place prevent people with epilepsy from obtaining an education or employment, making them completely dependent on their families.
Defeating Epilepsy’s board member and medical consultant, Dr. Prince Kazadi spearheads ASLEK: the Epilepsy Awareness Foundation for the Democratic Republic of Congo, with which Defeating Epilepsy works to provide medication and food to the families struggling with these stigmas and provide them with a greater chance at survival. (The featured image, above, is from a recent food drive.) Similar programs are underway with Epilepsy Awareness Uganda, and the Chifundo Epilepsy Awareness Association of Malawi.
This committed organization focuses on creating a healthy, strong, and ethical culture within the foundation and in the community, which is demonstrated clearly through the stories they tell on their blog. Among them are Boehm’s own touching story about how one of her sons (Eddie, pictured at right) approached her condition, which speaks to how children cope with a parent with epilepsy; and the story of Mary Ellen Gambon, a journalist and epilepsy advocate who worked to improve public transportation access in the greater Boston area for those with disabilities.
The staff from Defeating Epilepsy were instructed by William Chesnutt.
Taking care of our community is a core value at the Resilience-Building Leader Program. Our primary Corporate Social Responsibility (CSR) initiative is to provide RBLP exam prep training and leadership certifications to front-line leaders, middle managers, and senior leaders at selected charitable nonprofit organizations at no cost.
Learn more about how we are Giving Back to the community.